This interdisciplinary conference aims at crossing concepts and empirical research on the processes through which knowledge translation takes place in the self-management of chronic diseases, with a specific scrutiny of the expected and actual functions of the tools and the context in which translation occurs, on the one hand, and of the difficulties and negotiations that people living with a chronic disease face in gaining autonomy, on the other hand. For this purpose, the conference will bring together scholars working within different disciplines as well as healthcare practitioners, designers of medical devices and policy makers, i.e. actors who contribute to the on-going reflection on these salient issues.
In past decades, chronic diseases have become a salient social, political and healthcare issue. Empowerment, autonomy and self-management have been defined as medical priorities for the therapeutic support and healthcare of people living with chronic disease. The ways people cope with chronic disease require heterogeneous knowledge, including lay and medical notions and skills, and interactions with a large variety of healthcare professionals and other supporting actors (relatives, friends, patients, etc.). Thus, the complexity of chronic care implies a delegation of part of the medical tasks to patients, in order to enable them to undertake by themselves effective self-care and, in so doing, to improve their quality of life. Indeed, patients’ self-management of chronic diseases and their relationship with healthcare practitioners rely more and more on the use of various tools which are expected to be driven by evidence based knowledge in order to enhance efficient and effective care and self-care. This situation needs an accurate understanding on how techniques and tools do or not contribute to this effective self-care.